Nothing like knowing for sure and certain that your days are numbered to give you focus. This oral cancer part 2 has no good outcomes. Part 1 gave me a 41% chance of survival. I thought that the fact that I had no risk factors for that kind of cancer gave me an edge. Wrong! Now I have a 28% chance of survival. Best case, I lose more of my tongue but can still talk and eat, and have to undergo more radiation. Worst case of course is death.
My priorities have shaken down. If I could have 5 more years of life and not have to work, I could get 10-20 more books written (using the 'novel in 3 months' method. I've already chosen which ones come first). Finding a cover artist (I'm indie so there's no publisher doing it for me) is a holdup; I've got two books finished & ready, but my dazzlingly brilliant and very affordable cover artist, Donna Casey, lost her own battle with cancer. My attempts at covers look pathetic next to hers. So, the hunt is on.
I also need to save up $2K to get a tombstone ready. My husband has already passed on. His ashes are in an urn that is still sitting in my closet. I want to get my own cremation planned and paid for. The people who love me can throw whatever memorial they choose. Funerals are for the living, not the dead. I won't be there, so I want them to do whatever gives them comfort.
Someday I was going to travel, someday I would write a hundred novels, someday I would find true love. Nope.
There is no someday. You want to do something, do it now.
Miscellaneous thoughts and events in the life of a librarian/indie author who knits and probably loves cats too much.
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Tuesday, April 25, 2017
Sunday, April 23, 2017
Oh cancer, my cancer
Cancer. I have cancer. Why doesn't it seem real? I should be frightened. I should be angry - I have no risk factors for this cancer I now have had twice. Maybe I'm in limbo until I know the prognosis and what they're going to have to do to me this time. I know I'll lose more of my tongue. Will I still be able to talk? Eat? Has it spread farther? Has it metastasized? Will I lose part of my face, my jaw? What if it gets into my brain? Instead I'm just going on with my life until I face the doctor. Until they run the tests. How am I supposed to react here?
Terror, first. All Sunday morning I've been fighting back tears. Anger, second. At the two doctors who looked at it, told me it couldn't be cancer, and wouldn't do a biopsy. The first was in the fall. So it's had nearly six months to grow.
Best-case scenario, I lose another chunk of my tongue and have to do more radiation and/or chemo, but can still talk and swallow afterwards. Or I'm left without much tongue and can't speak clearly enough for anyone to understand, and have to be fed in a tube into my stomach. Or it's spread, and besides my tongue I lose the right side of my lower jaw and maybe more teeth and part of my face.
Worst case, it's metastasized and I'm terminal.
Monday I call the doctor's office to find out when my appointment with the oral surgeon is. After tests I'll have my prognosis and know which nightmare will come true.
Terror, first. All Sunday morning I've been fighting back tears. Anger, second. At the two doctors who looked at it, told me it couldn't be cancer, and wouldn't do a biopsy. The first was in the fall. So it's had nearly six months to grow.
Best-case scenario, I lose another chunk of my tongue and have to do more radiation and/or chemo, but can still talk and swallow afterwards. Or I'm left without much tongue and can't speak clearly enough for anyone to understand, and have to be fed in a tube into my stomach. Or it's spread, and besides my tongue I lose the right side of my lower jaw and maybe more teeth and part of my face.
Worst case, it's metastasized and I'm terminal.
Monday I call the doctor's office to find out when my appointment with the oral surgeon is. After tests I'll have my prognosis and know which nightmare will come true.
Thursday, April 20, 2017
Cancer, part two
My tongue cancer is back. After being told by two different doctors that the thing on my tongue could not possibly be cancer, so there was no need for a biopsy, after four months of pain during talking, eating, swallowing, I finally see an ear-nose-throat (ENT) doctor who tells me it is cancer. And it's had all these months of pain to grow and spread. I've been referred to UNM Hospital, where tomorrow I'll learn the next step. Most likely a bunch of tests, then surgery, then some sort of follow-up treatment. And learn soon how much more of my tongue will be cut off. Last time I could speak clearly although with an impediment. This time, who knows? Talking, tasting, maybe eating or swallowing altogether might be gone.
Everyone thinks I'm so brave because I'm not a quivering mass of tears. At least, not on the outside. On the inside it's a different story as all the possible futures play out in my head, most of them short and painful. But you go on. What else are you going to do?
Everyone thinks I'm so brave because I'm not a quivering mass of tears. At least, not on the outside. On the inside it's a different story as all the possible futures play out in my head, most of them short and painful. But you go on. What else are you going to do?
Friday, April 14, 2017
How I learned to knit
A friend gave me a bag of yarn she thought I'd like. She's weeding out her stash. This is one of those balls. White background with random bursts of rainbow and white metallic eyelash.
The little ball had 97 yards on it, if I read the weird and possibly foreign label correctly. After looking in vain for a pattern that would match, I decided to knit it up in simple garter stitch and see how far it went. It'll make a decorative scarf.
Knitting this fine yarn on thin needles in garter stitch gave me a flashback to learning how to knit. You see, both my mom and her mom were awesome crocheters, doing everything from lace doilies to afghans. I so wanted to learn, but I just couldn't get the hang of it. Finally I gave up.
I think I was eight when Mom's church group had a project of knitting bandages for a leper colony. If I'm right about my age that would have been sometime around 1961. The bandages had to be knitted from a certain kind of fine cotton yarn on very thin needles. I was fascinated by this process. I asked Mom to teach me that, and she did, but she was rather annoyed. "I hate knitting," she said. "I can teach you to cast on, knit, purl, and bind off, but that's it."
I loved it and knitted half her bandages. Afterwards, I knitted everyone I knew garter stitch scarves out of that good old acrylic Red Heart yarn that was nearly bulletproof. It was the only yarn I knew of at that time. Eventually, when I found some simple patterns, I branched out. When the craft became more popular and I found others who knitted and an amazing variety of yarns, I learned more stitches and more creative projects. Now I can knit lace - haven't yet attempted a doily, but I've found some patterns - and cables, and have knitted sweaters, hats, mittens, leg warmers, socks, toys.
It's the perfect craft for someone like me. I master a new craft and promptly am bored with it. There is no way anyone could learn every single knitting stitch, every technique. There's always something new to try. And it all started with bandages for a leper colony.
The little ball had 97 yards on it, if I read the weird and possibly foreign label correctly. After looking in vain for a pattern that would match, I decided to knit it up in simple garter stitch and see how far it went. It'll make a decorative scarf.
Knitting this fine yarn on thin needles in garter stitch gave me a flashback to learning how to knit. You see, both my mom and her mom were awesome crocheters, doing everything from lace doilies to afghans. I so wanted to learn, but I just couldn't get the hang of it. Finally I gave up.
I think I was eight when Mom's church group had a project of knitting bandages for a leper colony. If I'm right about my age that would have been sometime around 1961. The bandages had to be knitted from a certain kind of fine cotton yarn on very thin needles. I was fascinated by this process. I asked Mom to teach me that, and she did, but she was rather annoyed. "I hate knitting," she said. "I can teach you to cast on, knit, purl, and bind off, but that's it."
I loved it and knitted half her bandages. Afterwards, I knitted everyone I knew garter stitch scarves out of that good old acrylic Red Heart yarn that was nearly bulletproof. It was the only yarn I knew of at that time. Eventually, when I found some simple patterns, I branched out. When the craft became more popular and I found others who knitted and an amazing variety of yarns, I learned more stitches and more creative projects. Now I can knit lace - haven't yet attempted a doily, but I've found some patterns - and cables, and have knitted sweaters, hats, mittens, leg warmers, socks, toys.
It's the perfect craft for someone like me. I master a new craft and promptly am bored with it. There is no way anyone could learn every single knitting stitch, every technique. There's always something new to try. And it all started with bandages for a leper colony.
Saturday, March 25, 2017
So where's my Manic Pixie Dream Man?
The Manic Pixie Dream Girl. It’s
a common Hollywood trope, though I’ve got to admit I’ve never met one of these
women in real life. A man is trudging along in his
boring/routine/depressed/dead end life, and Poof! There she is, dropping
accidentally into his lap, and for no apparent reason deciding he’s the man she
wants. Promptly she sets about dragging him into fun, shaking up his routine, pulling
him up from depression, and showing him a brand new way to live. This trope
wasn’t given a name until recently, but it’s been around a long time. Example: Bringing Up Baby, 1938, starring Cary
Grant and Katharine Hepburn. It’s one of my favorite rom-coms. (Baby isn’t a
human, it’s a leopard.)
Others include Elizabethtown, I
love you, Alice B. Toklas, The Garden State, Butterflies are Free, Almost
Famous, and many, many more. The main characteristics include joie de vivre,
flakieness, a bit elfin, quirky to a fault. Sadly, this is all there is to
these characters. They have no goals, no depth, nothing else to them. They're bubbly, cute, and impulsive. Nothing else.
So where’s the male equivalent?
It is actually out there. Sadly, they aren’t as wonderful as the dream girls.
The qualities just don’t seem to transfer well, because the Manic Pixie Dream
Man is basically Peter Pan. He never grows up. As shallow a character as the
Girl, he has no goals and no depth. He’s childish instead of childlike,
charming but shallow, and for absolutely no apparent reason is devoted to this
woman who frequently doesn’t want him. She may even be committed to someone
else. Looks good in a rom-com, but in real life it’s a disaster. In real life,
women want more. Shallow wears thin fast. We want men, not perpetual boys. Someone to be a true partner, not one more child to take care of.
But hey, right when your life is
boring and routine and seems like a dead end, when you’re depressed and feel
hopeless, wouldn’t it be great to have a Sean Spencer (Psych), a Lloyd Dobler (Say
Anything) or a Benny (Benny and Joon)
come and fill your life up with quirkiness and drag you out to make you have
fun, even if it’s just for a while?
Monday, January 2, 2017
Anything's a cat toy
The other day I came home & sat down at the computer in my study to write. Suddenly realizing I still had my bra on, I took it off and dropped it on the floor to take with me when I left. A bit later I come out of the writing zone and hear something odd. When I looked down, I beheld my cat Renee slaying my bra!
Lying on her side and with her front paws wrapped around it, she was biting the daylights out of one cup while eviscerating the other with her back feet. My phone was nowhere near, so I couldn't take a picture. I just watched her for a bit laughing then took it away from her and put it up.
Life would be so dull without cats.
This is Renee, slaying a catnip toy in the same manner.
Post-catnip:
Lying on her side and with her front paws wrapped around it, she was biting the daylights out of one cup while eviscerating the other with her back feet. My phone was nowhere near, so I couldn't take a picture. I just watched her for a bit laughing then took it away from her and put it up.
Life would be so dull without cats.
This is Renee, slaying a catnip toy in the same manner.
Post-catnip:
Sunday, December 25, 2016
Not a great Christmas.
This is the first Christmas without Mom. It's also the first Christmas I didn't even want to bother with even a tiny tree. I know next Christmas will be better, but right now I just want to get through it.
Bought presents for a few friends, sent out a total of 4 Christmas cards. I did put up Christmas sentiments on Facebook and sent an E-card on email. That's about it. Today I had several invitations out, and had accepted one, but woke up queasy and just nauseated by the thought of food, so I canceled. I think my body was telling me I needed alone time to process.
The Christmas service last night was lovely, and I had planned to go to this morning's. But last night was perfect. That was my Christmas, and it was enough. The church tree and all the hanging greens were decorated with over 1000 peace cranes folded of white paper. A giant paper angel blowing a trumpet in flight hung across the sanctuary, and a multitude of smaller heavenly host hung everywhere overhead. I'm in the choir, and our anthem was "In the Bleak Midwinter" which was lovely. I think we did it well. The rest of the service was mostly carols, which I love to sing.
Back when I was a teenager, I had a book of Christmas carols. I used to sing every single one of them, all the verses, standing in the living room with the tree. My family consisted of myself and my parents. I don't mind taking my Christmas pleasures alone, it comes naturally to me. But this year, knowing that my parents and husband are gone, this year is the first time I've actually felt alone. It's sad, but it's OK. I know I have lots of friends and many cousins, and one aunt and uncle. And I'll never regret not having children. But this one time, I feel alone. I'm going to embrace the feeling because I know it's teaching me something. Eventually I'll know what.
Looking out my study window at hills dusted with snow and the neighbors across the street, I see some are gone - looks like most are gone. I'm glad for them - if they're the type of people who need to have a crowd around them, I'm glad they do. As an introvert and an empath, I require solitude to process and detox. Even as I write this I can feel peace descending on me.
I am going to spend this Christmas day writing and then watching movies. And it's enough.
Blessings and happiness to everyone, this day and the new year.
Bought presents for a few friends, sent out a total of 4 Christmas cards. I did put up Christmas sentiments on Facebook and sent an E-card on email. That's about it. Today I had several invitations out, and had accepted one, but woke up queasy and just nauseated by the thought of food, so I canceled. I think my body was telling me I needed alone time to process.
The Christmas service last night was lovely, and I had planned to go to this morning's. But last night was perfect. That was my Christmas, and it was enough. The church tree and all the hanging greens were decorated with over 1000 peace cranes folded of white paper. A giant paper angel blowing a trumpet in flight hung across the sanctuary, and a multitude of smaller heavenly host hung everywhere overhead. I'm in the choir, and our anthem was "In the Bleak Midwinter" which was lovely. I think we did it well. The rest of the service was mostly carols, which I love to sing.
Back when I was a teenager, I had a book of Christmas carols. I used to sing every single one of them, all the verses, standing in the living room with the tree. My family consisted of myself and my parents. I don't mind taking my Christmas pleasures alone, it comes naturally to me. But this year, knowing that my parents and husband are gone, this year is the first time I've actually felt alone. It's sad, but it's OK. I know I have lots of friends and many cousins, and one aunt and uncle. And I'll never regret not having children. But this one time, I feel alone. I'm going to embrace the feeling because I know it's teaching me something. Eventually I'll know what.
Looking out my study window at hills dusted with snow and the neighbors across the street, I see some are gone - looks like most are gone. I'm glad for them - if they're the type of people who need to have a crowd around them, I'm glad they do. As an introvert and an empath, I require solitude to process and detox. Even as I write this I can feel peace descending on me.
I am going to spend this Christmas day writing and then watching movies. And it's enough.
Blessings and happiness to everyone, this day and the new year.
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